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...something I wanted to add about the cyclosporine though. While stopping neupogen is more clear-cut, it sure wouldn't be an easy decision to stop or even taper the cyclosporine. I know of multiple SAA patients that are dependent upon it for several years, but the cyclosporine keeps them in remission.
My doctor thinks perhaps another round of ATG for me would enable me to get off the cyclosporine. He feels I have some residual auto-immune process that one more ATG could subdue, allowing me to hopefully enjoy a stable long term remission without cyclosporine.
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Kevin, male age 45; dx SAA 02/2012 - Hgb 5.8, platelets 14, ANC 200, 1% cellularity. Received ATG 03/2012. As of 03/2015, significant improvement - Hgb 15, platelets 158, ANC fluctuates around 1000, Lymphocytes 620. Tapering cyclosporine. BMB 20-30% cellularity.
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