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Old Thu Feb 25, 2010, 09:39 PM
Robi1Knobi Robi1Knobi is offline
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Join Date: Mar 2007
Location: Austin, Texas USA
Posts: 98
abd issues

Hi Serena,

I also have moderate AA now, and will go to NIH August 2011 and maybe get started on Danazol. I did have abd issues and constipation which is much better now that I have cut out dairy (for the most part) and feels even better when I eat vegan. Sorry...hope it gets better soon ). Try cutting out dairy for a week and see if that helps? Maybe you are lactose intolerant?
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.

Last edited by Robi1Knobi : Tue Jul 26, 2011 at 07:46 PM.
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