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Hi Vicki - glad you're doing well. I'm surprised you're iron levels are still high so long after transplant - i assume its been years since your last transfusion? I was hoping my iron levels just would clear up over time - not looking forward to taking jadenu - Are they treating the depression? I find this entire experience a bit exhausting and at times scary and depressing - I'm hoping that all gets better with time - or at least with increased physical activity. I was much more tired and depressed before the transplant. I hope you feel better in that regard.
Bailie - You are truly inspirational - but golf only once a week?
P.
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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