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Thank you for your POST last week.
Hi Anne and thanks for the tip on using corsodyl mouth wash. I will see what the pharmacy has tomorrow when I visit the clinic for my "vampire" session.
I am surpirsed to read your report that there isn't too much knowledge of MDS amoungst the Scottish medical fraternity, after all Edinburgh contributed so much to medicine in the 1900's. Are you being treated by the NHS?
Keep up your reasearch and please update your post as to any positive findings.
Are you receiving transfusions as an out patient? I would be interested to know how long it takes you to work through the system in Scotland for a unit of blood. Here in South Africa if I get to the hospital clinic at 7am I am lucky to leave at 5pm - my last visit involved endless queing and I had to return the following day in order to receive a second unit. I am learning to be a very patient person - no pun intended!
Stay positive.
Regards
Kevin
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