What are we waiting for? Totally Confused! Please help!
Totally Confused!!! My Wonderful Husband has been receiving red blood trasfusions since July 5, 2011. (About every 4-6 weeks). He has had 4 red blood transfusions (2 units each time) to date. We went to NIH to see Dr. Young: Loved him! We were told he was Moderate AA & also has PNH. He sugessted to watch & wait. He also sugessted that he could be "On the cusp" of a SAA. He & his staff explained that @ this time they really do not suggest any treatments until you become severe. He was told to live a normal life as possible. Well: What is "Normal"?.....Because he is living far from "Normal". He is used to working out every day & was working full time with many goals he wanted to acheive. He is sooo Fatigued that he can do none of these! We are confused as to what we are watching & waiting for. My Husband has severe fatigue & sees spots & short is of breath & has heart flutterings even after this last transfusion.
Any advise would be appreciatied!
Health, Recovery & Peace to All!!!!
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Jennifer: Loving & Hopeful Wife of Chris age 45. Diagnosed w/Moderate AA & PNH July 2011. "Watch & Wait"/Supportive Care.
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