|
Hi Jennifer, I don't know what level they are trying to keep your husbands Hb at but it is obviously too low for him to function properly. Different people function at different Hb levels. When I first became transfusion dependent I would function quite well until I dropped into the low 70s but as time passed I needed my Hb to be higher to feel okay.
Your husband needs to tell the doctor that he needs to be transfused at a higher Hb.
Good luck
Regards
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
|