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Jennifer, have you had any follow-up conversations with Dr. Young? If it were me I'd contact him and ask him specifically what it is they are waiting to see and why he feels it is better to hold off treatment.
With a diagnosis of MAA they usually like to wait because treatment doesn't necessarily bring about a complete return to normal blood counts, it may just return someone with SAA to an MAA level. That would be fine if he wasn't requiring transfusions. In my mind if you are needing to be transfused it's time to treat, but there may be other factors at work here that we don't know about. What are his current counts? If it is just his Hgb that is low and not the other lines, that may help explain why he doesn't fit the criteria for SAA.
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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