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I should update. Eric was later tested at repeatdiagnostics.com in Canada. We had to jump through hoops with our insurance, but whatever.
Three of his telomeres are in the 1st percentile, the other three are in the 10th percentile. There was some talk that he might have Dyskeratosis Congenita, but they decided he did not. DC patients have ALL telomeres well below the first percentile.
Many aplastic patients have shortened telomeres.
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Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified.
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