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Hi Birgitta-A,
Thanks for sharing your personal experiences with me. Appreciate that.
Just curious why you are not continuing with the blood transfusion anymore when your counts are slowly decreasing but instead going for treatment on Thalidomide + Prednisone ? Please ignore this question if i have cross your line.
Actually from the forum, i noticed that some of the patients have the Vidaza and/or dacogen and they are older than my mom. I guess the doctor was considering other factors as well like costs (very expensive according to the doctor), side effects and etc.
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Teo, son to Goh, age 71 dx mightbe MDS with low HB & RBC Jan 2012; FE 7755 on Nov 2014 - 6*500mg ferriprox; BT every month since Feb 2012; BMB done July 2013 - no conclusive evidence of MDS or PRCA; EPO stopped Nov 2013; Danazol 200mg*2 starts Nov 2013 + cyclosporine 25mg*4 starts June 2015
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