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Old Mon Oct 19, 2015, 02:27 PM
czar63 czar63 is offline
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Join Date: Oct 2015
Location: Chula Vista, CA
Posts: 1
Hello. I presented with very classic symptoms when I was 30. I was fit and active but PNH would occasionally humble me. Everyone is affected differently. How is your fatigue, do you have muscle soreness, shortness of breath, how often? All or any of those things and others may make work a very challenging activity. First, don't blame yourself for the 'new normal' that PNH establishes; the fault isn't yours and blame won't help (I know). Next, try to be patient with others. My spouse and most of the folks who I've known since my diagnosis 20+ years ago still don't realize the daily challenge of chronic anemia.
Choose your battles, listen to intuition. You may feel overwhelmed until life becomes familiar again. It will.
Michael
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