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Old Sun Sep 4, 2011, 10:41 AM
Alice P Alice P is offline
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Join Date: Oct 2010
Location: Maryland
Posts: 28
Neulasta

Thanks for your reply, Birgitta. John does not seem to have any other symptoms of infection, although his ferritin has spiked in recent weeks. His hematologist has put the Revlimid on hold due to his suppressed counts. I think they erred about 10 days ago when they allowed his Hgb to get down to 7.0 and his platelets to 12 on a Friday, so he had to wait until Monday to get transfused. He required additional (!) transfusions of red cells and platelets on Wednesday and Friday. We were waiting at the doctor's office at 8 am Friday to inquire about the low WBC. We didn't get to see the doctor, but when the nurse called him, he ordered a 5-day course of antibiotics. I can't believe the nurse hadn't noticed the low WBC when he had his last CBC on Thursday. It just goes to show you how vigilant the patient and caregiver have to be about checking those numbers.
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Alice, wife of John, diagnosed MDS RAEB-1 5/10. Tried Vidaza, ON 01910.Na (at NIH), & Vidaza + Revlimid with no effect. Progressed to RAEB-2. Supportive care only from 9/2011 until death 1/26/12.
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