|
Thanks for the replies. My LDH is elevated by only mildly elevated. My bilirubin seems to be in the normal range.
Post receiving the ATG I was in need of transfusions but have been RBC transfusion free since mid June.
My retic count seems to move around a bit - my hgb is now in the mid 8's and my retic count is in the 4s. I am nervous as it was in the 8s but has fallen.
My platelets that were also in the high 70s are now in the low 50s.
My PNH clone has increased a bit in size it is now about 9%.
Doctors seem completely confused as to why my counts are where they are. There has been some discussion about whether the issue is the cyclosporine and perhaps changing to prograft.
I had a bone marrow biopsy and aspiration about 2 weeks ago and unfortunately the sample was not good enough to confirm cellularity but they believe it to be 10 to 40%.
The interesting thing is that post horse ATG I also had issues with hemolysis and my HGB but it did not last that long. So I keep wondering whether given I had rabbit this time whether the hemolysis is just going to last a bit longer but it is un-nerving that my platelets are also not improving.
My lymphs are also still virtually non-existent.
|