I know what you mean.....I've become the watchdog for John. It's rare to find a really good GP that will coordinate with all your other specialists. At this point, the iron issue needs to be discussed with the hematologist.
I know that when other docs have wanted to put John a med or do something, we will always run it by our Hemo for a second opinion. We've had two incidences, both orthopedic in nature, where the docs consulted with our hemotologist before commencing treatment.
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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