There is hope and understanding
I agree with trump 64...go to the AAMDS conference in Chicago. These conferences are full of great information and positive energy. Remember knowledge is power!
Each patients disease symptoms, staging and prognosis are very different. Learn about the WHO classification and the new MD Anderson scale. Ask questions until you have understanding and then ask more. Read all the information out there and ask how does this refer to and affect me. get your answers and a second opinion if needed.
Watch and wait is a good thing. Don't use all your ammo to early or there will be nothing left when it is needed to save your life
Keep us all posted on your progress.
kris
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Kris, wife of Rick. DX; MDS/ Ringed Siderblast 5/2006. Supportive care, then Vidaza x 25 mo. HSCT 11//1/11 doing GREAT!
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