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Old Tue Oct 2, 2012, 09:53 PM
cdseibold cdseibold is offline
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Join Date: Sep 2012
Location: Pinewood, MN
Posts: 43
Call from Mayo

Get this - my Mayo hem Dr called on Sunday afternoon and talked to both my husband (at home) and I (out shopping) at great length about the report that was being mailed to me.

Wow, the extra effort has me floored. Go Mayo. You are the greatest!!!

Now the results. Still a little confusing. The pathologist cannot call the bone marrow sample as MDS.The genetics study says yes due to a 3 out of 20 metaphase result of a -12q anomaly. In conclusion, MDS is sometimes a little iffy to really pin down.

Mayo Dr wants to do more frequent blood tests and bone marrow. She suggested every 2 weeks for blood test (local hem Dr wants to wait until Dec or more than 8 weeks). Any comments on this from the rest of you?

Will give you more data after I have a chance to read Mayo report.
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Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
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