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You must be frustrated and worried...unfortunately it is not unusual to be without a diagnosis for quite a while. Bruce had low blood counts for the past 10 years, we have spent the last year and a half seriously trying to find out what is going on -- We have seen Dr. Paquette at UCLA twice...and Stanford also has an excellent reputation for treating bone marrow disorders. We learned along the way that sometimes bone marrow disorders don't present with neat diagnostic criteria, but are diagnosed by exclusion. Your plan to live your life as normally as possible in the meantime is a good one. I hope you find an answer soon.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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