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For what it's worth, a sensitivity to gluten and celiac disease are not the same thing. According to our family doc, the gene for celiac can be turned on and off, so the testing may not always be a reliable indicator.
Though he showed negative for celiac, Bruce has tested sensitive to wheat and gluten. He went off gluten in early December. It may be coincidental but since then, his time between transfusions has increased. Giving up gluten hasn't been so bad, there's lots of good substitutes available now.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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