Hi Glenda,
I thought that Exjade should only be prescribed when ferritin was over 1000. When I was put on Exjade my ferritin was over 5000 and I remember my doctor mentioning the minimum of 1000. I didn't think that Exjade could be prescribed on the PBS with a ferritin of less than 1000 because the doctor used to have to put in an authorisation request to Canberra. That was a few years ago maybe the system has changed. Perhaps you have some co existing medical condition which makes it important to have a lower ferritin level? Are your liver enzymes normal?
Can I ask what treatment centre you're going to? I used to go to HOCA at Mater and Chermside and then transferred to Logan but (hopefully) am in the process of going back to Mater but not HOCA.
Regards
Chirley
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