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Old Fri Mar 7, 2014, 11:52 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi PrettyFunky,

The more you delay treatment, the less likely you are to respond to it. So do not delay.

Even fast tracked, it will be awhile before Promacta is available for the treatment of SAA. I think I read 1-2 years somewhere… Also, Promacta is very expensive and the insurance companies make the doctors jump through many hoops before they prescribe it for ITP today. Even if you are able to get it outside of the clinical trial, the cost may be prohibitive without insurance.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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