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Old Sat Jan 15, 2011, 08:19 AM
cheri cheri is offline
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Join Date: Nov 2010
Location: Tuckahoe New Jersey
Posts: 243
exjade experience

Just wanted to update that after being on exjade for over a week--happily, no side effects!
Although it says use with apple or orange juice, (which was too much sugar for me on an empty stomach) I checked with the pharmacy, and it can be mixed with cranberry juice (I use unsweetened, organic, about 2tbs with the rest of the 7 oz water) as well.
Although I thought it might thicken upon disolving (does not) and could be nasty tasting, (is not) I am pleasantly surprised how easily I have incorporated it in my morning routine!
I had been a bit concerned about this long term drug, but so far, so good...
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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