[billyb]

Ask your doc why he wants you to start decitibane, it could be that your blasts are riseing and starting to build up in the marrow and possible spill out into the blood and the decitibane could control the mds so the bone marrow can do what it is supposed to do, and there not wanting that to happen ....there is a reason for them to want to start some kind of treatment, transfussions every couple months is a good trade off instead of other complcations that can araise from low blood counts, what you dont want is low risk mds to turn into high risk mds or aml, dont be scared to ask you doctor what his experience has been with other patients and the sucesses with the treatment plan they are suggesting, we have even went as far as recording some of our coversations with the doctor so we can go back and listen to it because sometimes it is hard to understand thier lingo