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Paul, my husband is not having difficulties with Exjade, thank goodness. His ferritin level is down some from 2300 to 2100 sort of. And if you read up on iron illnesses online, you can read about doing things with food to help some with the high iron. One is less meat at all and less beef. When you serve beef, no acid or vitamin c foods with it. They help get the iron taken up by your body when you eat iron foods. I'll look for a good site on that topic. Most excess iron comes from the donors' blood but I do what I can to lessen the intake, read labels on foods and such.
You will get good care at SCCA. My husband is going back, no date set yet. Just to see what there might be new to help him. He gets depressed at times but I keep him going. Glad you're keeping in contact here.
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Caregiver for husband
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