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Old Wed Mar 21, 2012, 10:29 PM
Susy Susy is offline
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Join Date: Apr 2011
Location: Northfield, MN
Posts: 6
Amberb - YES, I have a similar experience and have been reading this forum for over a year waiting to find someone with the same experience.
My cellularity was below 10% Nov. 2010, I was needing 2 units of blood every 4 weeks and was diagnosed with SAA and went through ATG in Dec 2010. My numbers went up at first, and then they came back down to 'stable' levels.. I am still needing transfusions, but now only 2 units every 12 - 14 weeks. Doctors had me go through another BMB in July 2011 to see if maybe I had MDS...they could not find that, but found that my bone marrow had increased to 40%. I have a very small PNH clone, but there isn't anything else they have been able to come up with.
last week my hgb was 8.8, platletes 52 and wbc 2.7.
I visit the Mayo Clinic every 3 months, with a CBC in between at my local clinic...and everytime I get my CBC's done, I swear that my counts are going to be up, and of course that hasn't happen yet.
Thanks for sharing your concern and story
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Susy, age 48; diagnosed SAA Nov. 2010; treated with ATG Dec. 2010; currently on tacrolimus
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