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Sun Jul 5, 2009, 06:09 AM
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Using Dacogen for Long-Term Care
Hello,
I would like to get an understanding of how many people are currently being treated with Decitabine (Dacogen) and for how long you've received your treatment? What treatment reg. are you receiving (3 day intensive, 5 day)? Also, how has your dx, symptoms, prognosis changed since treatment. All4DK - receiving monthly treatments since Dec. '08 - 5 day cycle - has become transfusion independent and is awaiting BMB to see how blast count has +/-. I have been getting mixed responses from Doctors who say that Dacogen only works for short periods of time, but I would like to disprove this with some success stories.  Thank you all and God bless, Joe
__________________
Joe, son (mother age 55); diagnosed CMML Oct 2008; treated with Decitabine 
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