Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > AA
Register FAQ Search Today's Posts Mark Forums Read

AA Aplastic anemia

Reply
 
Thread Tools Search this Thread
  #1  
Old Sun Jul 19, 2009, 01:20 PM
lauren02882 lauren02882 is offline
Member
 
Join Date: Jul 2009
Location: Narragansett, RI
Posts: 1
Port-a-Cath Chest Shield for physical activities..sports

My 11 Y.O. son is on Cycl therapy, week 14, after ATG treatment for Severe A.A. His numbers for ANC and platelets and RBC are high enough to allow him some physical activity..but the question is, HOW DO WE PROTECT THE PORT AREA FROM IMPACT? I have searched the web for a shield / contraption and can find nothing, absolutely nothing for this purpose! Bizarre. Any suggestions, links, etc.? (The hospital's PT department can "make" him one they say, but I don't think insurance covers it..so I am trying to make one of my own..but I'm awful with that sort of thing and have failed twice already!) Lauren
Reply With Quote
  #2  
Old Mon Jul 27, 2009, 04:29 AM
NLJabbari NLJabbari is offline
Member
 
Join Date: Aug 2006
Location: San Jose, California
Posts: 139
What type of physical activity did you have in mind? There is a netting that nurses make tube/shirt-like wraps that can hold the lines against the patients chest. I used to carefully wrap the lines in a large gauge? (spelling) and then cover it with an extra-large tegaderm and finally my son would wear the netting. For extra protection like throwing the football (playing catch) wear a chest protector like the ones used in Karate...I think the padding comes in varying thickness.

hope this helps

Norma J (Yashar's mom)
Dx'ed 2004 SAA
Doing well
__________________
06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
Reply With Quote
  #3  
Old Mon Jul 27, 2009, 01:49 PM
rschem rschem is offline
Member
 
Join Date: Mar 2009
Location: Creston,BC,Canada
Posts: 28
Smile line protecter

I used baby socks over my hickman line.They gave me extra padding while in bed and helped to keep the lines clean.I also wore a t shirt for extra padding and protection, of course I' m not as active as some.
Robert S
saa.2008/08 partially recovered.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT -4. The time now is 02:38 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org