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MDS Myelodysplastic syndromes

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  #1  
Old Tue Jul 28, 2009, 11:55 AM
flowerlady flowerlady is offline
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Join Date: Jan 2008
Location: Atlanta,Georgia
Posts: 19
Vera

Hi Guys...

Becoming rather concerned....have not heard from Vera since last week when she mentioned she was heading to her halfway home...any updates out there?
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Flowerlady, 49, Diagnosed MDS 5q- 06/07, Revlimid 07/07 - 11/08. Vidaza 12/08 - 3/09. Allogeneic Stem Cell Transplant 4/14/09.
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  #2  
Old Tue Jul 28, 2009, 04:02 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
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Thumbs up SCT

Hi Flowerlady,
I am afraid I havn't heard anything about Vera lately but it is wonderful to know that you are still going strong!
Kind regards
Birgitta-A
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  #3  
Old Wed Jul 29, 2009, 07:34 AM
flowerlady flowerlady is offline
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Join Date: Jan 2008
Location: Atlanta,Georgia
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Vera

Thank you for all your kind messages and I am sorry I wasn't always able to respond. Your kindness did motivate me though! I am home from Houston and beginning weekly visits with my local oncologist with monthly visits to my Dr. in Houston. I did catch a message from Vera and she was very busy catching up on e-mails. I am hoping that is a great sign!
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Flowerlady, 49, Diagnosed MDS 5q- 06/07, Revlimid 07/07 - 11/08. Vidaza 12/08 - 3/09. Allogeneic Stem Cell Transplant 4/14/09.
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  #4  
Old Wed Jul 29, 2009, 08:40 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
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GVHD

Hi Flowerlady,
Good that both you, Vera and other members have managed to fight the disease!

Now when 100 days have passed since your SCT you perhaps know if you still have any symptoms of GVHD?
Kind regards
Birgitta-A
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  #5  
Old Sun Aug 2, 2009, 11:55 PM
PH Steele PH Steele is offline
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Join Date: Feb 2009
Location: Graham, Texas
Posts: 30
So happy to hear from Flowerlady

Flowerlady, I am so glad to hear that you are home from Houston and doing better. I know this has been an ordeal for you. I have been following you on the forums and your blog.

I became acquainted with the forums as I researched the condition of a young friend. He, age 20 years, has his BMT on June 26th and is recovering at home in Houston where he lives.

Please keep us posted as you recover at home.
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