Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Thu Sep 3, 2009, 04:59 AM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
The UK MDS Patient Support Group about access to treatment

Hi all,
The UK MDS Patient Support Group reports that MDS patients could have lived longer with access to the best treatment (for example Vidaza).

Kind regards
Birgitta-A
Reply With Quote
  #2  
Old Thu Sep 3, 2009, 11:48 AM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,556
Birgitta,

The link in your post didn't work, since it depended on your own login ID. For your privacy we removed it from your post.

Can you post a generic link or tell us what the report said?
Reply With Quote
  #3  
Old Fri Sep 4, 2009, 04:49 AM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
MDS treatment in UK

Hi all,
I will try another link about info from the UK MDS Patient Support Group: Almost a fifth (18 percent) of patients suffering from myelodysplastic syndromes (MDS) could have lived for longer if they had been able to access treatments (for example Vidaza) that are currently not approved by NICE for treatment on the NHS.
http://www.pressemeldinger.no/read.asp?recno=80455
Kind regards
Birgitta-A
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
MDS Foundation to Hold 10 U.S. MDS Patient and Family Forums in 2017 Marrowforums News and Events 7 Wed Oct 18, 2017 11:41 AM
Hershey Pennsylvania Community of Hope Support Group Marrowforums Support Groups and Communities of Hope 0 Sun Feb 8, 2015 12:17 PM
Building Blocks of Hope: New Patient Information Handbook Marrowforums News and Events 2 Fri Apr 26, 2013 02:34 PM
Leuemia & Lymphoma Society - MDS Support Group Meeting May 9, 2009 in Hamilton Doug Mylie Canada 0 Wed Apr 29, 2009 11:05 AM
MDS Patient Support Group Meeting Monica Meyer Support Groups and Communities of Hope 0 Mon Nov 13, 2006 03:06 PM


All times are GMT -4. The time now is 05:36 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org