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#1
Mon Mar 1, 2010, 07:15 PM
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Iron Overload
I am a new member but have been following the forum for some time. I have a question today - my husband is tx dependent - he receives 2 blood and 1 platelet weekly - total 41 units of blood and 15 platelets - he has a very metallic taste in his mouth all the time and does not want to eat anything because of it - do any of you experience this? and would it be due to Iron Overload? his ferriten level is around 1800 which I don't think is really over the top after reading what some members are experiencing.
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Judy, wife of Gerry age 76; diagnosed with MDS June 2009: RAEB-Intermediate 1; treated unsuccessfully with EPO; transfusion dependent; weekly blood and platelet tx; started Vidaza April 2010 
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#2
Mon Mar 1, 2010, 09:17 PM
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Is it possible that his gums are bleeding a little bit? Not enough see but enough to taste it.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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#4
Tue Mar 2, 2010, 01:24 PM
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I forgot about the nose bleeds John would have from time to time. That too would cause the metallic taste.
Glad those days are over!!!
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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