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MDS Myelodysplastic syndromes

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Old Mon Mar 15, 2010, 10:29 PM
Cmall Cmall is offline
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Join Date: Feb 2010
Location: Lombard, IL
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Denture cream

I am struggling to use this site ... computer illiterate..... so I may have missed any posts regarding this. Has anyone seen any news on denture creams and bone marrow diseases that look like MDS? I saw a couple commercials on TV ( I know, I know can't believe all we see) but then when looking into it further on the internet there is more info regarding a toxic level of zinc and then the lowering of copper levels. I haven't researched it much but am curious if anyone has seen this. And again sorry if this has already been covered.
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Old Tue Mar 16, 2010, 02:35 AM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
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Hi,

I definitely have read about increased zinc and low copper causing an MDS type syndrome. I don't wear dentures but wondered if I got excess zinc from somewhere. I also read that increased zinc can also cause neurological problems, which I also have. I have altered reflexes with numbness, parasthesia and loss of joint position. I have just recently had an MRI of brain and spine because of the increasing difficulty I'm having trying to walk. I haven't got the result of the MRI just yet but I did get a phone call from my haematologists secretary today telling she had made an appointment with a neurologist ASAP on the directions of my haematologist who has the results of the MRI. (eeeek)

I mentioned the zinc thing to my doctor when I started getting the neuro signs but as I have also had extreme B12 deficiency and this causes the same syptoms, he wasn't very open to this suggestion. I think I might have been tested for copper levels anyway but it was a tempting thought that I had something so easily treatable. (I have statred taking some oral copper just in case).

For someone computer illiterate, you've done very well.
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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