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MDS Myelodysplastic syndromes

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Old Wed Mar 31, 2010, 07:22 PM
mausmish mausmish is offline
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Kindred Spirit

Hi - I'm new here. Since my diagnosis, I've been hungry for any and all information about MDS. In my internet searches, I came across a terrifc blog: Mitch's MDS http://mdsmitch.blogspot.com/search?...&max-results=7 Mitch tells his own MDS story from the time he was diagnosed, and his writings resonated with me on such a personal level that I thought I should recommend his work to others here.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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Old Wed Mar 31, 2010, 08:41 PM
Neil Cuadra Neil Cuadra is offline
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Mitch sounds like a great guy with a positive attitude and a great love of the outdoors. Unfortunately, his MDS was found to have progressed to AML in January and he passed away 2 weeks ago on March 15 (obituary).

His courage was apparent and his story reminds us once again to enjoy what we have because we never know what our future holds.
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Old Thu Apr 1, 2010, 03:42 PM
mausmish mausmish is offline
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Mitch

Yes, I had read his entire blog before I posted the link here. Coincidentally, I started reading it on the 14th and completed it the day after he died. I wept because it came as such a shock. The common link I felt with him was the way he expressed his thoughts and questions regarding his illness, as well as his wry sense of humor. I'm a competent writer but don't like to write so it was a joy to find someone who eloquently expressed thoughts so like my own. I'm sorry I missed the opportunity to tell him what his blog meant to me.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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Old Fri Apr 2, 2010, 04:17 AM
Neil Cuadra Neil Cuadra is offline
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If you want, you could post a comment on his blog to let his family know.
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