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#126
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Vera's passing
On behalf of Marrowforums, I want to extend condolences to Vera's family and to all of those people on this site who took Vera into their hearts as she struggled to overcome her MDS. She will be remembered here as a fighter who was always willing to share the details of her experiences and offer support to others facing similar battles. This long thread of posts, which began on June 9, 2009, contains 125 posts that were viewed over 5,500 times! Vera's contribution to Marrowforums will be a valuable resource to new patients and caregivers who arrive looking for information and support.
With sympathy, Ruth Cuadra
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98 |
#127
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I am so saddened by this news. Vera was such an amazing person so full of life. She fought hard and had such a positive attitude. She will be missed dearly. At least she suffers no more.
Laura
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Laura; dx SAA; MUD transplant June 18, 09; ITP June, 2011; fighting multiple complications/GVHD and now low counts again... |
#128
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I am sorry to hear this sad news. May the presense of God be felt by Vera's family.
Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response. |
#129
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May Vera rest in peace.
May Vera's husband and her family be strengthened by their treasured memories of better times and happier days with Vera. May we all be heartened by the strong example of her fight for good health. Gloria
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Gloria, early 50s, dx SAA Summer 2007, Pred July 07, Rituxan Aug 07, dx PNH Feb 2008, ATG Apr 08, began Soliris 5/31/11 |
#130
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I had faith that Vera was going to pull through this. To read this news is so disheartening. I am to procede with a transplant in 6-7 weeks and now all I can think about is leaving my family behind...much too soon!
My prayers go out to Vera and her family. Jill
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Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58 , IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18) |
#131
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God Bless Vera
Such sad sad news. May God bless Vera's spirit and keep her family strong through this trying time.
Prayers going out, Susanne
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Daughter to Sharon 68 dx SAA Feb. 2010 ATG, Cyclosporine & Prednisone. |
#132
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Vera
I read Vera's posts eagerly and drew strength from her positive attitude and recovery. I'm grateful for her posts and optimism. My best wishes to her family and prayers for us all.
Beryl |
#133
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She is hero for me and mini summer transplant team.She always optimistic and give me positive thougts.Now i understand everythig change easily.One month ago everywhere may full of sunshine,now full of stormy and sadness.
i want to extend condolences to Vera's family and lovers... |
#134
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Vera
Quote:
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#135
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If any of you want to attend the Celebration for Vera and need the location, directions, or contact information, or if you want to know where to send flowers, please send me a private message and I'll send you back the details.
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#136
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There are two memorial funds in Vera's name:
Best Friends Animal Society |
#137
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Vera
I attended Vera's Celebration of Life today. It was a beautiful ceremony and was filled with the many people whose life Vera had touched. I talked to Dennis about the large group of on-line friends who Vera has influenced with her strength and positive spirit.
Dennis shared some more information on the circumstances surrounding Vera's death, that I know Vera would want to share... Vera contracted pneumonia from an unknown source. Three days later, she was hospitalized. Her immune system was fighting it, but unfortunately, the GVHD also kicked in. It couldn't differentiate the good cells from the bad and started to attack over 60% of her healthy lungs. Please be careful all post-transplant people!
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent |
#138
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Jill, do not be discouraged. Vera would definitely NOT want you to be. She was always so positive and upbeat. Hang in there. My young friend (age 21) who had his transplant in June is doing great. He goes to school, is in ROTC, and works! That is maybe too much, but he is determined to have his life. You will do great. Keep us informed about what is going on with you.
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