I have a question

[bebop]

My Dad has been really bad the last few weeks. Blood levels in the low 6's to low 5's with 2 of the last weeks needing 3 units of blood each plus platelets. So he goes back yesterday and his hemo was 8.2 and plts 25k. He was feeling good and actually ate 2 full meals yesterday. What a shock that was for us! Well today he is back to being very weak. He is suppose to go back on Friday to get blood again. Have any of you experienced this before?

[Neil Cuadra]

A lot of patients feel like they are on a roller coaster from one blood test to the next, watching their counts go up and down. Sometimes counts are up because a previous transfusion is holding and sometimes they are down because the transfusion has been used up. Counts can also be affected when he's dehydrated, so any one blood test doesn't give the big picture. Sometimes you just can't tell why counts ended up at a certain level, so you just have to take comfort when they are up. Appreciate the good days when he feels less fatigued, no matter what the counts are.

[bebop]

thank you Neil for your response. oh believe me I cherish every good day he has which now are few and far between. He knows his time is short and he wants everything done NOW! lol

[Lisa Z]

HOW DO YOU START A NEW THREAD IF i WANT TO START ONE TO FIND OTHER CAMPATH PATIENTS?

[bebop]

when you see the main list of threads there is a button that should say new thread or something to that affect.

[Neil Cuadra]

The Frequently-Asked Questions page (here) has just the instructions you need:

How do I start a new thread?