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#26
Tue Sep 14, 2010, 09:41 PM
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Ann
I am so sorry for the loss of your father. A death of a parent is so very hard. You have my prayers for the healing to begin. Remember his strengths and memories. Take care.
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Susan Patient, 58, MDS, UPDATED 9/13 Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW - 
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#27
Tue Sep 14, 2010, 09:53 PM
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Ann
So sorry to hear this, it is a very difficult time. May memories of the good times begin to fill your day in the months to come.
Warm regards, Debbie
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Debbie, wife of Mike age 58, diagnosed RAEB 2 April 2010. Initial blast count somewhere between 10-15% then 20% after two treatments of Dacogen. Completed induction therapy 8/2/2010. BMB 8/31/10 - 4% blasts. SCT 10/1/2010. Relapsed in 10/2014, second transplant from same donor on 12/31/2014.
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#28
Wed Sep 15, 2010, 10:23 AM
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Just to clarify something so no one thinks we "gave up". Two wks prior to his death, we were told his marrow was no longer producing any cells whatsoever, red OR white. We were given the option (he was totally incoherent and unable to make his own decisions) to continue giving him transfusions every three days to prolong his life another 3 months, or let him go. We knew he would not want to live like that.
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#29
Wed Sep 15, 2010, 01:57 PM
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Quote:
Nobody can second-guess you for making the decision that had to be made. You didn't ask to be put in that position -- nobody would -- but I admire your courage and thank you for letting us know what happened.
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