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#1
Sat Nov 20, 2010, 03:35 PM
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Darvocet
The FDA has recommended that all darvocet propoxyphene products be removed from the U.S. market. I have successfully used it for pain since 1996.
What are the rest of you using for pain. I specifically get deep bone pain. Any suggestions? 
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#2
Sat Nov 20, 2010, 03:41 PM
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lindajo
Hi - I get deep bone pain also and use Loratab for it. Does seem to work. Are you currently on treatment?
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Susan Patient, 58, MDS, UPDATED 9/13 Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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#3
Sun Nov 21, 2010, 08:20 PM
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I am not currently doing treatment with any drugs. It has been a year and a half since my last transfusion. I tried Procrit and it didn't help. I am on supportive therapy only. Transfusions and antibiotics as needed. I take one Darvocet morning and evening. I hope I find something I can tolerate as well.
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#4
Mon Nov 22, 2010, 06:26 AM
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lindajo
Quote:
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Susan Patient, 58, MDS, UPDATED 9/13 Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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#6
Mon Nov 22, 2010, 06:49 PM
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Tramadol/Ultram
It is my understanding that these drugs are for long term use...does anyone know of anything, other than aspirin, or ibuprofen, that would work for sporadic muscle aches/pains? Tylenol and Vicoden has been of no use.
I am on Vidaza treatment, and Bactrim but no other meds... My upper arms and shoulders have been very painful for the last week...I seem to feel like it's a flare up of some sort...today was a little better. I have never suffered from any type of arthritis or chronic pain, and it's not like a sprain or strain...both arms are affected. Thanks!
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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#7
Tue Nov 23, 2010, 06:35 AM
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Hi Cheri!!
Quote:
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Susan Patient, 58, MDS, UPDATED 9/13 Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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#8
Tue Nov 23, 2010, 07:42 AM
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Hi Susan
Hmmmm.....your wrists make me wonder if there is some connection with the joint pain & Vidaza.....we will have to keep track of these aches and pains!
Rheumatiz? (I sound like an old lady!) I don't even know what that is! I am trying to avoid taking pain meds on a daily basis....be well all, and enjoy the holiday!
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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#9
Tue Nov 23, 2010, 04:45 PM
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Just a thought.
I also get joint and muscle pain and was on Vidaza for 5 cycles. Recent blood tests showed that I had a severe Vitamin D deficiency and was told that I'm at very great risk of having a pathological fracture. As I have a well rounded diet and live in Queensland (State motto used to be "The Sunny State") I can't think of any reason why I should be D deficient. My only thought was that the Vidaza might prevent absorption. As I said before, it's just a thought. Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy. FISH reported normal cytogenetics but gene testing showed Xq 8.21 mutation Xq19.36 mutation Xq21.40. mutation 1p36. Mutation 15q11.2 deletion
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#10
Tue Nov 23, 2010, 05:44 PM
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Vitamin D
I was discovered, by my family doctor, to have a severe vitamin d deficiency before I started Vidaza and was given a prescription for a weekly therapeutic dose. When I mentioned it to my oncologist, she said that most Americans are vitamin d deficient but just don't realize because they never get it tested. She didn't seem too concerned. Not long after that, my 18-year-old niece was also diagnosed as being severely vitamin d deficient, about half the suggested minimum level.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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#11
Wed Nov 24, 2010, 11:32 PM
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Tylenol
You have to be careful, because, Tylenol can mask fever symptoms and guess what??? Darvocet has Tylenol in it. So, that should not be a choice for an MDS patient... seems something else can be found. My husband was prescribed Oxycodone 5mg for mild pain. When he had really bad pain, they went to a much stronger pain killer called Dialadid, but, that was when his paid very so very intolerable and he was transitioning from MDS to AML.
I've heard of Tramadol. It's non-narcotic, but, is a pain blocker. Good luck! Cindy
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Cindy, wife of Ron 66 dx w/MDS(RARS)Feb'09,Vidaza 13mons. BMB 2/10 -5q/increased blasts. Watch/wait May-Jul10. Revlimid Jul-Aug10:A-Fib. BMB Aug18, 12%blasts. MDS to AML. Induction completed 9/21/10. BMB Oct10:CR. Consolidaton:10/25/10. Dacogen Dec27-29. SCT on Hold. Fevers/Nt sweats Jan11.
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