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#1
Fri Nov 19, 2010, 07:55 PM
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Day -5 of my transplant!!
Hi all, just wanted to share what's going on so far. I checked in on the 16th, got my port put in my chest (have had two previous picc lines in my arms). Then went up to the Oncology unit until a room on the BMT unit was open. Started chemo on the 17th, Busulfan for the first 4 days and then it gets moved to Cytoxan for the last two days. After that I get a day of rest and then I get my transplant!! So far I haven't had any bad side effects. I do get a rash right after chemo and it gets pretty itchy but a bit of Benedryl takes care of it. My nurses are all awesome and have been very helpful. It is only my third night in the hospital and it is a bit overwhelming at times. But my girls made we some neat pictures so they are all over my room. They have been up a couple of times but they are both in school and and we live about 75 miles away. So thats not fun. But I talk and text them all the time. Not really much to report. Wasn't too sure how the first few days were going to go but I am glad that I am bored! We'll see how the next few days go. I'll keep you posted!!
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Lee-39 years old-AA,PNH and chromosome 12 disorder-1 rabbit ATG treatment and 1 horse ATG treatment. Getting my bone marrow transplant on November 23, 2010!!!! Counts as of 12-27-10 HGB 12.0, WBC 7.8, platelets 80, Neut# 3.9(12-24-10)!!! Just a touch of GVHD but back home! 
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#2
Fri Nov 19, 2010, 08:04 PM
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leeslay
Good luck to you!!
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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#3
Fri Nov 19, 2010, 09:25 PM
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Lisa:
Good luck in your journey Take it one day at a time, and keep in shape by walking the halls or in your room, that seems to help my hubby after his transplant. Christine
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Wife of Husband with aml/ mds SCT MUD Mini transplant 8/10
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#4
Fri Nov 19, 2010, 11:42 PM
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That's so great! Love to know how it continues. xx Julie
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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#5
Sat Nov 20, 2010, 02:20 AM
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Lee,
It's wonderful news that your chemo is going well. Your message is especially meaningful to me today. I had my consult to sign all my consents this afternoon to start chemo on the 23rd and for the first time in a long time was feeling very apprehensive and depressed about the whole process. Your very positive post has reduced my anxiety a lot. Thank you much and best wishes for your continuing excellent progress! Karen
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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#7
Sun Nov 21, 2010, 09:14 AM
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Lee
Best wishes to you!!! you can do it.
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Susan Patient, 58, MDS, UPDATED 9/13 Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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#8
Tue Nov 30, 2010, 08:50 AM
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GREAT NEWS! Keep us informed!
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor!  cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
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