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Transplants Bone marrow and stem cell transplantation

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  #1  
Old Fri Jan 14, 2011, 08:45 PM
bebop bebop is offline
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I want to donate

I have done alot of thinking about donating marrow. I feel it is my duty to try to help others. Do any of you know how I would go about doing this?
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  #2  
Old Sat Jan 15, 2011, 03:31 AM
Neil Cuadra Neil Cuadra is offline
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That's very generous of you. Volunteering to be a donor is easy and can save lives.

The way to become a potential bone marrow or stem cell donor in the U.S. is to sign up for the National Bone Marrow Registry at the Be The Match site of the National Marrow Donor Program. They send you a cheek swab kit. You swab your cheek to get some cells and then send them back.

See their list of frequently-asked questions for answers to the questions people usually ask about joining the registry.

Once you are registered, you wait to see if you're called to donate. They let you know if a patient in need of a transplant matches you. If you're still eligible, healthy, and willing to donate, they make the arrangements and you have a chance to save a life.
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  #3  
Old Sat Jan 15, 2011, 08:02 AM
Susan L Susan L is offline
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Bebop

Hi - I just had a friend log into the site and they are sending her a package to do the cheek swab. It is very easy to do, not like years ago. Thank you for being so thoughtful.
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Susan Patient, 58, MDS, UPDATED 9/13
Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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  #4  
Old Sat Jan 15, 2011, 05:25 PM
bebop bebop is offline
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thank you all so much for the info. I dunno....this week it hit me like a ton of bricks that I need to do this. Never really thought about it before. thanks again.
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  #5  
Old Fri Jan 21, 2011, 02:34 PM
Noni Noni is offline
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Thank you so much for posting this and for sharing the information.

I used the link to register and request the collection kit.
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  #6  
Old Fri Jan 21, 2011, 03:22 PM
Neil Cuadra Neil Cuadra is offline
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For those in the U.K.

Information about the British Bone Marrow Registry, which is managed by the National Health Service, can be found on their Question & Answer page.
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  #7  
Old Mon Jan 24, 2011, 07:54 PM
Neil Cuadra Neil Cuadra is offline
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See the National Marrow Donor Program office

You can see what the NMDP processing and storage facilities look like in this video. You have to wait through a short ad first, but then you can see how the NMDP checks in the sample kits, stores them, and even where they keep the blood samples that they collected from potential donors in the 1990s before they switched to cheek swabs.
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  #8  
Old Mon Jan 24, 2011, 11:24 PM
launch launch is offline
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Hi Bebop,
I recently signed to be a donor through Be the Match too. I did the cheek swab thing, and within about 3 months received a letter notifying me I had been entered into the registry. I pray I can give the gift of life to someone someday! Glad you're on board too!

Hugs, Cindy
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Cindy, wife of Ron 66 dx w/MDS(RARS)Feb'09,Vidaza 13mons. BMB 2/10 -5q/increased blasts. Watch/wait May-Jul10. Revlimid Jul-Aug10:A-Fib. BMB Aug18, 12%blasts. MDS to AML. Induction completed 9/21/10. BMB Oct10:CR. Consolidaton:10/25/10. Dacogen Dec27-29. SCT on Hold. Fevers/Nt sweats Jan11.
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