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#1
Thu Feb 17, 2011, 05:15 AM
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Vidaza in the UK at last
Hi all members in the UK
Now NICE has endorsed Vidaza: http://uk.reuters.com/article/2011/0...71G01920110217 Kind regards Birgitta-A 
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#2
Thu Feb 17, 2011, 06:51 AM
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Thanks for posting this, Birgotta, that's great news that the appeal worked!
 (Also, I had no idea there were only 700 of us MDS patients in the whole of England and Wales - I swear I see more than that just in the Kings HOP!)
__________________
36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!  I've run 5 marathons now!! (PB 3:30!)
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#3
Thu Feb 17, 2011, 01:22 PM
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For those who don't know, NICE is the National Institute for Health and Clinical Excellence, formerly the National Institute for Clinical Excellence, in the U.K.
NICE makes recommendations to the NHS (National Health Service, NHS Scotland, and NHS Wales).
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#4
Fri Feb 18, 2011, 10:43 AM
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It's about time! Thanks for posting this great news, Birgitta.
__________________
Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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#5
Fri Feb 18, 2011, 02:40 PM
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Vidaza
Hi Karen,
Yes, I read a post from a member from the UK that got her Vidaza paid by special sponsors but she had to have high risk disease to get the drug free. Kind regards Birgitta-A
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#6
Fri Feb 18, 2011, 03:50 PM
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From the Pink Sheet
A few more details about Celgene methods...
http://www.oncologystat.com/news/Cel...mendation.html And the fight goes on and on. 
__________________
Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%  ) 47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).
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#7
Sat Feb 19, 2011, 02:16 PM
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Thats great news. So glad to hear it.
__________________
Husband diagnosed 10/08 RAEB-2 Started Vidaza treatments in Jan 09 until now
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