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MDS Myelodysplastic syndromes

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Old Sat May 21, 2011, 06:29 AM
Jaclyn Smith Jaclyn Smith is offline
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Join Date: May 2011
Location: New Zealand
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Masto Cytosis and Myelofibrosis

My Dad was diagnosed with Masto Cytosis and Myelofibrosis running in parallel.

He was dx in 2006 and at the time was given approx 6 months to live. That was 5 years ago and he is still doing okish.....

I would love to hear from anyone with either disease and hear your experiences. Am more than willing to share anything you may wish to know about Dad and his fight that he is slowly losing but will continue to battle with us all by his side
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Jaclyn, daughter of Lance dx with Mastocytosis and Myelofibrosis 2006
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