Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Fri Jul 8, 2011, 08:46 PM
larryp larryp is offline
Member
 
Join Date: Jul 2011
Location: Sulphur Springs, TX
Posts: 3
New Member

Hi everyone. I am a new member as of today.

I was diagnosed with MDS in December 2009. I had a series of Vidaza treatments over a 5 month period and then in June of 2010 had a marrow transplant. I seem to be getting stronger as time goes by but run out of gas easily.

I filed a claim with the VA last week because of my exposure to Agent Orange in 1968 during my tour of duty if Vietnam, but based on what I have been reading, I don't expect a favorable response from the VA.

Thanks for all you do and the information you supply.

I'm just learning how this forum works..........so bear with me.
Reply With Quote
  #2  
Old Fri Jul 8, 2011, 09:39 PM
Greg H Greg H is offline
Member
 
Join Date: Sep 2010
Location: North Carolina
Posts: 660
Welcome!

Hey Larry!

Welcome! This is a great place to compare notes with other folks who have MDS and other bone marrow failure diseases.

I'm glad to hear that your transplant has gone well. Where did you have it?

Folks post updates on this forum occasionally about the VA and MDS. I gather that you are quite likely to be turned down initially and will have to fight through the appeals process to get any satisfaction. It's probably a tough slog -- but might be worth it if you can connect with some of the other folks fighting and have the energy to take on the great VA bureaucracy.

Thanks for your service. I'm sad to hear it got you exposed to Agent Orange.

Take care!

Greg
__________________
Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
Reply With Quote
  #3  
Old Fri Jul 8, 2011, 09:56 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,556
Larry,

In case you didn't already spot it, be sure to see the MDS, Agent Orange and the VA discussion thread.
Reply With Quote
  #4  
Old Sat Jul 9, 2011, 12:17 PM
larryp larryp is offline
Member
 
Join Date: Jul 2011
Location: Sulphur Springs, TX
Posts: 3
Thanks for your response.

Greg, I had my transplant in Dallas, Texas at UT Southwestern Medical. I would recommend it to anyone in this area that needs any kind of medical attention of any kind.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
New Member Welcome Marrowforums Tell Your Story 185 Mon Apr 4, 2022 11:53 AM
New Member Profile: Evan MacNeil Marrowforums Site Announcements 0 Fri Nov 18, 2011 12:34 PM
New Member Profile: Alyse Booth Marrowforums Site Announcements 3 Wed Jun 1, 2011 07:37 PM
New Member Profile: Kirby Stone Marrowforums Site Announcements 0 Tue Jul 28, 2009 08:57 PM
New Member Profile: Birgitta Alexius Marrowforums Site Announcements 0 Sun May 10, 2009 04:39 PM


All times are GMT -4. The time now is 12:00 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org