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#1
Sun Sep 25, 2011, 12:10 AM
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hair coloring
I have been having my hair colored medium brown for the last several years. But I read the hair dye has been known to be a cause of MDS! So I have not colored it in 2 months. But now I look awful with white roots and brown hair. I realize down the road when I go in for a transplant, I will lose my hair entirely, but for now does anyone have any suggestions? Have you had this dilemma? Dr. says only henna or natural colors, but I don't have the energy to manage this myself and don't know that I want anything artifical at this stage of my life.
Also, if I was diagnosed 7/11 and had good blood work up till 7/10, and BMB shows fibrosis, when could I have gotten MDS? I was treated for the last 3 years for a form of arthritis: polymyalagia rheumatica. Was MDS something I have had for years despite perfect blood work, except for sed rate?
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin. 
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#2
Sun Sep 25, 2011, 07:32 AM
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donna, I had my transplant Jan. 11 this year. My Dr. and Nurses said it is ok to color my hair - so I did. I was wondering about it as well, but they all said it was ok. Lori
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor!  cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
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#3
Sun Sep 25, 2011, 10:22 AM
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Thank you Lori. So many questions, I am so glad this forum is here. I am still learning to navigate, as I have never been on one.
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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#4
Sun Sep 25, 2011, 11:32 AM
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There are some safer hair color products out there to choose from. The Skin Deep site is pretty good for finding a less toxic products. I think Eco and Aubry Organics are not as toxic.
http://www.ewg.org/skindeep/browse.p...ts&atatime=100
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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#5
Sun Sep 25, 2011, 10:17 PM
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Dear Marlene,
Thank you for the information. I would never have found this website!
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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