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#1
Tue Oct 18, 2011, 12:23 PM
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So far
REtired March of 09..this year really felt run down, went for a physical and declared anemic.
went into the hospital, ran every test, including bmb and concluded I have mds. Sent to Vanderbilt for a second opion and verified including another bmb. I was put on predisone at 60mg and now on revlimid 10 mg, predisone 20mg, plus a procrit shot every Friday. I am feeling pretty good, other than hand cramps at times. I also had a transfusion of 3 units in the hospital and 2 units 2 weeks ago. I appreciate the info on your line.
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Ron, 69, aug/26/11 diagn w/mds. 2 bmb and now on predisone, revlimid 10mg. 2 transfusions,last two weeks ago. as of 3/30/12 still on revlimid 10mg dailly,ending predisone 4/14/12.wbc=2.9hgb=12.0,platelets=118 
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#2
Tue Oct 18, 2011, 02:32 PM
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Hand cramping? APO-K helps me...
Before dx with MDS I was on slow-release potassium chloride tablets (2x APO-K 8MEQ) to reduce hand cramping episodes. YMMV but now a single tablet per day works for me.
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%  ) 47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).
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