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#1
Tue Oct 18, 2011, 07:36 AM
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newby
ron-69-diagnosed 08/26/11 on predisone and revlimid
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Ron, 69, aug/26/11 diagn w/mds. 2 bmb and now on predisone, revlimid 10mg. 2 transfusions,last two weeks ago. as of 3/30/12 still on revlimid 10mg dailly,ending predisone 4/14/12.wbc=2.9hgb=12.0,platelets=118 
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#2
Tue Oct 18, 2011, 09:14 AM
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Welcome
Hey Ron!
Welcome to the party! Hope the Revlimid is working for you. Do you have deletion 5q? Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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#3
Tue Oct 18, 2011, 04:30 PM
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Hi Ron, and welcome, feel free to share, dump, whatever, here...
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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#4
Wed Oct 19, 2011, 04:51 PM
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del 5q
Quote:
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Ron, 69, aug/26/11 diagn w/mds. 2 bmb and now on predisone, revlimid 10mg. 2 transfusions,last two weeks ago. as of 3/30/12 still on revlimid 10mg dailly,ending predisone 4/14/12.wbc=2.9hgb=12.0,platelets=118
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#5
Thu Oct 20, 2011, 12:08 AM
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Ron, deletion 5q is a good thing when you have MDS, though it doesn't sound that way. One of the front line drugs, Lenalidomide (Revlimid) works better for people with that chromosome abnormality than for those without it!
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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#6
Thu Oct 20, 2011, 12:21 PM
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Revlimid
For del 5q, the ratio for "working" is about 2/3 (66 per cent effective).
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%  ) 47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).
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