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#1
Tue Dec 20, 2011, 12:21 AM
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NPlate for SAA
I began Nplate about 6 weeks ago. Today for the first time ever, my platelets rose from 16 to 24. My normal time between platelet transfusions is 9 days; it has been 2 1/2 weeks. I know it's too early to declare victory over one part of my medical quagmire, but it's about the most encouraging thing since I started down the path of MDS, etc. Let's hope for more good news!
Sue
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Sue, age 72; Dx 6/2010 MDS Int-2. Revlimid unsuccessful, began Aranesp 10/2010; additionally Dx PNH 2/2011, Soliris added 3/2011. ATG 5/2011, Cyclosporine 5/2011. Nplate 10/2011 to 10/2012 . Exjade began 12/2013 due to high ferritin level, discontinued 3/2014 because of increase in creatinine. 
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#2
Tue Dec 20, 2011, 04:14 AM
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Congratulations, Sue. That's great news.
How is your energy level?
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#3
Tue Dec 20, 2011, 01:55 PM
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My energy is still low. It must be related to one of the diseases and not my RBC. But then I have roof leaks all over the house, so much of my day is spent swapping out buckets and running the towels through the dryer. Oh, and did I mention the cat that won't use the litterbox?
Wouldn't it be great if the Nplate was truly working? Sue
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Sue, age 72; Dx 6/2010 MDS Int-2. Revlimid unsuccessful, began Aranesp 10/2010; additionally Dx PNH 2/2011, Soliris added 3/2011. ATG 5/2011, Cyclosporine 5/2011. Nplate 10/2011 to 10/2012 . Exjade began 12/2013 due to high ferritin level, discontinued 3/2014 because of increase in creatinine.
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