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#1
Thu Dec 22, 2011, 05:03 PM
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Seasons Greetings!
Happy Holidays All!
Since 2 years ago today, I was in the middle of a 3 week coma and on life support, I am especially grateful to experience another Christmas and the prospect of another year of living with MDS.... I wish you all a happy, healthy 2012! Merry Christmas, Cheri
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly 
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#2
Thu Dec 22, 2011, 05:42 PM
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Merry Christmas and Happy New Year all!
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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#3
Thu Dec 22, 2011, 06:02 PM
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And Happy Holidays to all as well...Cheri a year ago my husband was in the hospital and did not know if he would see a New Year....the 1st snowfall we had this year, the hat was off, face up and tounge out to taste the first snow flake....and this year he even has been able to snorkle with the fish....
to another healthy year with MDS.... Thanks to all who have gone before with trials....
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#4
Thu Dec 22, 2011, 07:13 PM
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Thank you Cheri. Best wishes to you in 2012.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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#5
Fri Dec 23, 2011, 12:56 AM
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Happy Holidays to you, Cheri. I'm very happy that you're still with us - always enjoy reading your posts.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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#6
Fri Dec 23, 2011, 03:11 AM
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Love your post.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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#7
Fri Dec 23, 2011, 05:44 AM
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2012
Cheri, A very Happy and Healthy 2012 to you too
 !Kind regards Birgitta-A
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#8
Fri Dec 23, 2011, 08:05 AM
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Happy Holidays
Hope for improving health for all of us in the coming year, and Thanx to everyone for all of the info coming across this forum and sharing your stories and situations!
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66 yr female;diag 6/09; MDS, unspecified, normal cytogenetics: blasts 10%; successful Dacogen;every 4th wk.; as of Aug.'12 changing to every 5th wk., stable at Hgb 12-14/platelets 200-300/wbc 2.-3.
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#9
Fri Dec 23, 2011, 02:56 PM
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Cheri, Your stories are always inspiring and helpful. Here's hoping for continued improvement for you and all of us with bone marrow failure. Thanks tytd
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possible low to int-1 MDS with predominant thrombocytopenia, mild anemia, dx 7/08, in watch and wait mode
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#10
Fri Dec 23, 2011, 10:56 PM
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Cheri,
We wish you and all our other forum members a very Merry Christmas and a Happy New Year. I'm so glad for each and every one of you who keep me uplifted and give me hope for my husband as he struggles with MDS.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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#11
Sat Dec 24, 2011, 01:36 PM
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Dear cheri and all,
i wish you a happy christmas, some quiet days and a bliss of health, - and good perspectives for your health for the upcoming year.
Kind regards, Margarete (This ist a song performed by the brother of a former schoolmate from me) http://www.youtube.com/watch?v=RlbqE...f=mfu_in_order
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Margarete, 54, living in Vienna, Austria, MDS/AML M2, diagnosed 9/2007, then Chemos, aSZT 4/2008, chronic GVHD
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