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#2
Fri Dec 2, 2011, 05:24 AM
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Hey, Nadia. We are in State of Jefferson
 .. south of Medford on the California side.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks. 
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#3
Sun Dec 4, 2011, 05:26 PM
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Anyone in Oregon
I'd love to talk with you. My email is ntelsey@gmail.com
Nadia
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#4
Tue Feb 28, 2012, 12:30 AM
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MDS in Oregon
I was diagnosed in November 2011. Live in Roseburg and I am starting my third round of Vidaza this week. No change yet. I have had 4 blood transfusions and spent a week in the hospital in January due to fungal infection in lungs and then pneumonia. Also receiving 3 shots of Neupogen (not sure how to spell that) each week and taking boat load of pills. I'm 58 years old and was a smoker for about 15 years, I quit in early 1980s.
I have started the process of getting a bone marrow transplant at OHSU. Luckily I can still work and have health insurance. I lived in North Eugene for 21 years. My son is a senior at U of O. My daugther graduated U of O and lives in Portland. Anyway, I would like to hear how you are doing and what is being done to treat your MDS. I hope things are going well. John
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John; diagnosed Nov 11 with MDS; currently receiving Vidaza infusions
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#5
Sun Apr 1, 2012, 06:18 PM
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Living with MDS in Oregon
John -- apologies for the late reply -- I took a break from the site and meanwhile started a trial of Campath at NIH.
All my counts are low, and even lower post-treatment though that will hopefully change. Last WBC-.7, Neutrophils-.34, Hemoglobin- 8.9 and platelets-20. I was getting tranfusions every week or so but have now gone 2 1/2 weeks and may have my blood tested less (weekly instead of twice a week) I go back to Bethesda and the NIH in May and *may* get a sense whether the campath is working. Otherwise I should know in August. A transplant has never been offered to me as an option. I have no family donor and they tell me my MDS isn't bad enough. My fear is that by the time it is, I will be too old (I'm almost 65) How are you doing these days? Let's stay in touch. Nadia
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#6
Mon Apr 2, 2012, 10:45 PM
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Nadia, I am sending prayers your way.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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#8
Fri Apr 6, 2012, 07:51 PM
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Me too, Nadia! I love JPR too, in fact just made a pledge today!
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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#9
Mon Apr 9, 2012, 06:31 PM
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We may have pledged the same day!
There's a chance my partner and I will be driving down the Coast to Calif. in late Sept. If we do, I'll let you know in case we can make a detour. I hope all is going well for you both. Nadia
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#10
Tue Apr 10, 2012, 01:52 AM
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That would be awesome, Nadia!
__________________
Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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