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#3
Sun Jul 22, 2012, 03:49 PM
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I am so sorry for your loss. Please take care of yourself and I hope the wonderful memories you shared will help sustain you at this difficult time.
God bless you.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying. 
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#4
Sun Jul 22, 2012, 06:02 PM
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This is very sad news, slip up 2. My condolences on the passing of your husband. We had so hoped that the Vidaza would sustain your husband's counts, and it did seem to be working at the end of last year. You were so supportive of him, asking questions, finding out what the various drugs do, and always working to make him comfortable. The doctors and drugs did their best but we know it was your love that got him through these last years, and I hope you can find comfort in that knowledge.
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#5
Sun Jul 22, 2012, 10:53 PM
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So Sorry for Your Loss
Slip Up 2;
I echo the sentiments of the prior posts, and hope your strength will sustain you. May God Bless You for all that you did. My Condolences and Prayers are sent out to you. Beth
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Beth - R.N., B.S.N and wife of recently diagnosed husband who has been classified at stage 4 MDS  . and I can't help the one I love the most.
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#7
Mon Jul 23, 2012, 08:55 PM
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Hey Slipup2!
So sorry to hear the news. I hope you have family and friends around you to comfort you, but know that you always have friends waiting here. Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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#8
Tue Jul 24, 2012, 05:35 AM
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MDS
Dear Slip up 2,
How sad that you have lost your beloved husband! You gave him support in every possible way during the long fight against our disease. Kind regards Birgitta-A
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#9
Tue Jul 24, 2012, 06:16 PM
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I'm so so sorry. This is very sad news for all of us.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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#10
Tue Jul 24, 2012, 07:13 PM
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Very sorry to hear this. May God give you strength at this time and guide you.
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor!  cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
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#11
Tue Jul 24, 2012, 10:06 PM
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best pal
Hello slipup, I am very sorry that you have lost your best pal. I thank you for sharing his and your story. tytd
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possible low to int-1 MDS with predominant thrombocytopenia, mild anemia, dx 7/08, in watch and wait mode
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#12
Thu Jul 26, 2012, 05:41 AM
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So sad to hear of your loss. Our thoughts and prayers go out to you.
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Dean,age 76, dx MDS, RAEB-2, 17% blasts, June 2012 - May 2013 - Dacogen with Neupogen and transfusions as needed. End of May 2013 Dacogen stopped working. BMB July 2013 shows RAEB-2 and severe Myelofibrosis. Passed away September 30, 2013
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