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Bone Marrow Failure Causes, treatment approaches, terminology, related diseases

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  #1  
Old Fri Aug 31, 2012, 09:14 AM
kjraimondi kjraimondi is offline
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Join Date: Oct 2011
Location: San Antonio TX
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The need for bone marrow donors

As many of you know... I was diagnosed with vsAA September of 2011. I had an unrelated bone marrow donor and had a transplant in March 2012. I am doing amazingly well and fully understand the importance of educating the public on what it means to give marrow and how to get on the registry.

Please share this video in your networks. I hope we can reach as many people as we can!


http://www.youtube.com/watch?v=MB6hC...VebEKnP7DJ1sXg
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Husband; Father of 2;Diagnosed with vsAA 8/25/11; hATG 9/6/11; 12/12 MUD BMT 3/23/12; Follow my journey at https://www.facebook.com/MyNewBirthday San Antonio TX
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Old Fri Aug 31, 2012, 02:53 PM
Neil Cuadra Neil Cuadra is offline
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Ken,

I'm glad to hear you are doing so well, heading for that 6-month mark.

Thanks so much for helping spread the word about the bone marrow registry.
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Old Fri Aug 31, 2012, 10:12 PM
evansmom evansmom is offline
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Location: Ontario, Canada
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Have to laugh guys...I read Neil's response and was looking for the "like" icon! Forgot what network site I was on!

Keep up the great work Ken!
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.

www.caringbridge.org/visit/evanmacneil
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Old Sat Sep 1, 2012, 12:25 AM
cathybee1 cathybee1 is offline
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Excellent video, Ken. I posted it on my FB page.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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