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#1
Sun Sep 2, 2012, 10:37 PM
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Dapsone and Aplastic Anemia
After reading Surfergirls post from Friday, I began to wonder if anyone else on the site who has AA, MDS or PNH, recalls taking Dapsone before their symptoms first appeared.
I was on Dapsone for a few weeks after my autologous stem cell transplant to prevent PCP (type of pneumonia). This was just weeks prior to my first AA symptoms so I now wonder if this may be the cause of my AA.. Please share if you experienced this as well...
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Dena Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great 
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#2
Mon Sep 3, 2012, 11:19 AM
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John was on dapsone too. 3X/week only. But I don't think it impacted his BM. However, as our doc said, all antibiotics suppress BM to a degree. And John was on another new one which later showed to cause AA also. So, I have to wonder if that is why he never fully recovered his counts and it's taken a very long time to get to where he's at now.
We will never know.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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#3
Tue Sep 4, 2012, 04:47 AM
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Almost immediately after ATG treatment, my son Yashar was put on Bactrim to prevent PCP. After learning that it too could cause AA; I asked his doctor about this. I told him I was very uncomfortable w/this new detail I had learned and I wanted him off this med. He then scheduled Yashar for monthly Pentamidine breathing treatments to prevent PCP. It seemed that after removing the Bactrim, Yashar's counts began to rise...
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic... 
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#4
Wed Sep 5, 2012, 01:13 PM
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Quote:
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45 year old female. Diagnosed with SAA in 1998 at 31 years of age. ATG x2. Eprex. 200 Hgb/platelet transfusions over 14month treatment. Currently still on low dose Cyclosporine/Vasotec/Dapsone. Doing very well. 
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