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#1
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Cheri Decker's battle
Friends,
On Friday morning, August 3, 2012, my mother, Cheri Decker, lost her battle with AML/Myelosdysplastic syndrome. Mom spent nearly a week with out receiving any blood or antibiotics and was not in much pain. Any discomfort felt was a result of surgeries that were not related to her disease and she received painkillers to help her. She wanted me to share this information with you, in hopes to give you some insight. Sincerely, Drew Decker (son)
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly |
#2
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Drew,
I am so sorry to read that your Mom, Cheri, lost her battle with AML/MDS. I had followed her posts since her diagnosis and was hoping she would respond to treatment. May God bless you and comfort you during this difficult time and may your memories of your Mom sustain you in the days ahead.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying. |
#3
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Cheri
Dear Drew,
How sad that your mother and our brave member Cheri has left us. She was fighting as long as possible. We shared many experiences. Warm regards Birgitta-A 73 yo, dx MDS 2006 |
#4
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My Condolences
Drew;
I am so sorry for the loss of your Mother. She was a great contributor to the board, and a very empathetic woman. My condolences to you and your family. Beth Trimble
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Beth - R.N., B.S.N and wife of recently diagnosed husband who has been classified at stage 4 MDS. and I can't help the one I love the most. |
#5
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Dear Drew,
I too am so sorry for your loss. I hope the memories of your Mother's love will bring you comfort at this sad time. May God Bless and give you peace, Sally |
#6
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Drew,
My wife and I offer our condolences as well. We admired your mother's spirit and positive attitude. In the many months we talked to her online she was always friendly and helpful to other patients. It's not a surprise that she asked you to let us know what happened; it's a reminder of how wonderfully generous she was with her time and attention and how she wanted the best for everyone. |
#7
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Drew,
Thanks for letting us know. Your Mom was a seriously excellent human being. She will be sorely missed in this community. Take care, Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com |
#8
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Thank you, Drew, for taking the time from your grief to tell us. I'm very sad to see Cheri go, she was such a lovely person and she fought so hard. I've been following her story for a few years now and it's comforting to know she didn't die in pain.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!) |
#9
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Drew,
I am very sorry for your loss. Your mother was a fantastic contributor of optimism and encouragement to this forum. We will miss her greatly.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body. Last edited by DanL : Mon Aug 6, 2012 at 12:47 PM. Reason: update |
#10
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cheri
Hello Drew, I am sorry to hear of Cheri's death. I and others on this forum learned a lot from her and she was an inspiration for us all. I remember some advice she gave that was meaningful to me which was " live life while you are trying to get well". Thanks for sharing this news with us. Tytd
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possible low to int-1 MDS with predominant thrombocytopenia, mild anemia, dx 7/08, in watch and wait mode |
#11
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Dear Drew,
I am sorry to hear about your mother. She stands out in my mind as the first person I read on line and could relate to. She seemed to push the envelope in living life and she helped to pull myself and I'm sure others out of our malaise. I was lucky to come across her via this forum. Donna
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin. |
#12
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Drew....so sorry about your Mom
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#13
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did Cheri ever have a transplant? Does anyone one know? If not why?
DonnaJ
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin. |
#14
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Cheri
Hi Donna,
Cheri had AML at dx. She started treatment and almost passed due to adverse effects. Then she got MDS and was treated for that disease. She never dared to try strong chemo again. Kind regards Birgitta-A |
#15
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Thank you for letting us know Drew. I will pray for strength for you and your family.
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor! cgvh eyes,skin (Caringbridge.org/visit/loripatrick) |
#16
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Drew,
I'm so very sorry to hear about Cheri's death. Somehow, I missed your post until now. Please accept my belated condolences. I always looked forward to your mother's posts on the forum. She was a delightful woman, always strong, charming, witty, and inspirational to us all. She will be greatly missed here. I hope you will find strength and solace in many good memories. Karen
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com |
#17
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hon I am so sorry! I just read this post. such a shock! your family is in my prayers.
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#18
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I'm so sorry too.
Deb |
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