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#1
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My bone marrow registry drive
After putting many many hours into hosting a bone marrow drive, I got a grand total of... drum roll please... 45. Not nearly as many as I had hoped, I feel kinda depressed. I did raise $900 though, I suppose that helps.
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Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified. |
#2
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Edith,
You should be congratulated and you should feel proud. You might have saved 45 lives. When our Hope, Steps & A Cure committee organized a huge event in Los Angeles in 2011, with hundreds of attendees and hundreds of volunteers, our bone marrow drive got a total of 39 sign-ups (see the details here) and we were pleased. So getting 45 registrations at a one-woman drive is huge, and the fundraising was great work too! |
#3
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Wow! I think that is very impressive. Thank you for the incredible effort.
Scott SAA 3/2012 |
#4
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Thanks
What a great effort Edith - your work is really to be commended. I am keeping my fingers crossed that one of those 45 is a match for Paul.
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Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process. |
#5
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As someone waiting for a "perfect match" to come my way, I think that is a great effort! If even one person is saved then all your efforts are worth it! Well done!!
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Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013. |
#6
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Edith,
You did great. Those people will tell their friends, and the word will spread.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/ |
#7
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Thanks for making me feel better. Neil, you raised an incredible amount of money! Now thats awesome! The post says it's an annual fundraiser, how did you do in 2012? Will you have one in 2013?
MDSPerth and SLB - I too hope for a match for you. I asked about finding out if someone from the drive was ultimately a match, and she (the person from Be the Match) said it's possible but takes a lot of hours for her to gather the data and she just doesn't have the time to do that for each drive she has. Raising awareness was something I hadn't considered, but you're right - somewhere someone will hopefully remember this.
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Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified. |
#8
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Quote:
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#9
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When will you know the 2013 dates and locations? I think I'd like to be a part of it. My coworkers are getting a team together to do a Warrior Dash, http://www.warriordash.com/, but this walk sounds more like my speed.
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Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified. |
#10
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Edith,
There will also be one in San Antonio. It won't be as crowded.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/ |
#11
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